Thursday, November 22, 2007

Happy Thanksgiving to all the Angels & their families.

Today is turkey day and I am going to my great grandparents house! See daddy has a grandma too just like me and Tori. I will visit and play with my cousins for a bit, then I have to visit mommy for a few hours too for the holiday. Just want to wish everyone a happy and safe holiday from me to you. Angel hugs to all.

Tuesday, November 20, 2007

Yipee!

Just a quick note to keep everyone up to date. Grandma joined the Angelman Syndrome Foundation after joining the listserv a few months ago! Wow, what great things were inside that packet for daddy and me. She also got a bit crazy and ordered 20 of the new 2008 Angel Calendars from Erin & Rob, Maggie's parents. I hope my family loves them as much as she does cause I think they are all getting one. Hee-hee.

Maggie's parents really put a lot of work into that calendar....did you see it yet? If you haven't checked it out you really do need to. Just go to Maggie's website and look for the calendar link. It's easy...

Hope everyone has a Happy Thanksgiving and spends it with their loved ones. That's what I am planning on doing.

Sunday, November 18, 2007

Another week in my life....

Well it wasn't an exciting week but you know me I make the most out of life. Been battling a cold this week and the usual constipation problem. Makes for tough sleeping when I don't feel good, but I am not complaining. I appear to be luckier then most angels as I am still seizure free for now unlike many of my other angel friends. Daddy spoke to the genetic specialist and I guess my first set of tests came back normal? So I am going to have to have more done to see if I have any deletions. (Whatever that means?)

Three specialists said I have AS back in July, but since it is only a clinical diagnosis they cannot seem to get any assistance for me medically to help with my doctor bills until I get a "true blue" positive result? We all know what that means.........more pokes to get more blood from me for testing. I do not like being poked but daddy says he will take me to this visit like before so I am in good hands. I guess I have to go see my orthopedic doctor too. Doctors and more doctors it seems. I guess all angels see lots of them from time to time so I will cooperate. But I don't have to like it, right?

I would much rather be playing with my sister Tori and getting in to mischief. Its fun to hear no-no & hands down. Those are two of daddy's favorite things to say to me next to "I love you M & M." Hee-hee.

Well off to bed I go. I hope this finds all my angel friends across the world healthy and happy. Angel hugs and sloppy kisses to everyone!