Had a great week!

Hi everybody! Thought I would share my week with you. I am finally feeling better and seem to be adjusting to the Keppra. And no seizures have been seen lately. I go to see the neurologist on Tuesday for a follow up so I will let you know more after my visit.

This past week Tori and I got our report cards from our schools. We both did AWESOME! One would never know by our grades that we have had so many changes in our lives over the past few months. But then again, when you have the family and friend support we have how could we not do well?

I do not know any details regarding my daddy's divorce or his battle to keep us with him but I think I can tell you this for certain; "God has been very kind to my daddy, Tori and myself over the past few months. He has sent a wonderful group of guardian angels into our lives since September. We have Dave, Gillian, Miss Robin, Lisa and most recently our newest angel Shayne." They ARE taking extra special care of the three of us and we are so thankful to all of them.

Grandma reminded me to thank all of you for the prayers that have been sent our way. She whispered in my ear that God has been listening to them all.

So a special thank you to everyone and sweet angel dreams to all. xoxo

Just a wee update.......

Well folks, I am finally feeling more like myself the past couple of days. Giggling and laughing and definitely a bit more sturdy on my feet. Woo hoo! Grandma is finally relaxing a bit for the first time since this whole ordeal began on January 2nd. I know my daddy is happy to see the worrisome look leave her face. He kept telling her to not let my reaction to the Keppra get her down and he even told her; "Mom you are the one who prepared me for Emma to possibly begin having seizures and now your the one who is not handling it well. What is up with that?" You should have seen the look on my grandma's face when he said that!

Needless to say I don't think grandma found that amusing...but my daddy was merely trying to get her to relax and stop worrying so much about me. You know it isn't healthy for her to worry like this. Daddy is merely worried about her health, just like he does Tori's and mine. You just gotta love that man...

Tori has come down with a cold this week so she is getting the old cherry Vick's vapor rub down and the Children's Tylenol Cold syrup. Sure glad its not me this time! Oh yeah, I see the neurologist for a follow-up appointment on the 29th so if all goes well maybe we won't have to change medications and I can settle back into my routine of meeting more milestones. I was really doing well before the seizure stuff started and I know grandma is wanting to try a few new things with me. :-)

There is no rest for the weary...LOL. Actually all the new stuff she does is kinda fun. And we all know we angels are clearly in to having lots of fun. Did I tell you that I like to sip out of a big persons cup rather than a sippy cup? Not sure why as I sure have a bunch of different sippy cups thanks to grandma and Walmart. I think we must own one of every style now. I just don't like them. But I do like sipping from a big girl cup. I look really grown up when I do it and get lots of "good girl" praise every time I take a drink.

Oh yeah, I almost forgot. Auntie C made me some really neat bibs this week. They are waterproof and great for a drooling angel. I will have grandma take a picture of me wearing one so I can show you just how cool they really are.

Well off to slumber land till next time. xo

Still struggling along....geesh the meds are a downer!

I promised to keep everyone current on the Keppra medication so here ya go! I am dragging myself along day to day fighting to keep awake and on my feet. I get so groggy that it is tough to make it through my mealtimes right now and lately the physical therapists in making notes regarding my not being myself and doing things I once did with ease. So my family is not the only one seeing the changes as of late.

This seizure gig is not fun and I just want to get back to being me again. I hope it happens soon as grandma is really anxious to have me back to running her ragged, laughing and giggling all the time. I might tire her at times but I just found out she really likes all the things I try to get into and all the new milestones I was achieving before this seizure stuff began. She is simply not happy seeing me like this. And we all know that old saying: "If grandma isn't happy then....." (Just kidding grandma, I know you are worried).

Daddy keeps reassuring her to hang in there but lately she is very emotional and hurting inside from my inability to display my usual enthusiasm and joy. Hang on grandma.....I will find my way back soon. I promise. xoxo

Meet my grandma....

Well...I thought is was high time you all got a glimpse of the voice behind Miss Emma. By now you have all figured out how active a role my grandma plays in my daily life. She is the one talking to all of you and learning all the in's and out's of Angelman Syndrome so that her and Daddy are ahead of the game when it comes to me and what to expect next.

Check out this short video of us and note that our camera woman is none other than my sister Tori. Gee she is so smart for only being 5.10 yrs old. She even reads Dick & Jane books now to me and grandma.

I thought I would let you know that I am still a bit out of it with the Keppra dosing going up recently so don't panic. My grandma worries enough for all of us as my Daddy likes to say. It is a good thing he is so collected when it comes to me as grandma is totally the opposite. She is all about emotions when it comes to her grandchildren and tends to take everything to heart. Some of you already know that as you have been writing and supporting her emotionally as she takes this trip with me into the world of seizures. Its been a bumpy trip so far but everyone tells us it will level off soon. So I continue to hang in there with daddy and grandma by my side.

Angel hugs and sloppy kisses to all.