Friday, January 18, 2008

Still adjusting to life on seizure meds.....

Hi everyone! I am still trying to get use to life on seizure medication. It has definitely been an adjustment for all of us. Grandma has been chatting with lots of parents on the Angelman Listserv and getting lots of support from all the other Angel families in regards to all the changes I am having with this new medication. And my Daddy has been chatting with my neurologist too just to keep her current on me and how I am doing.

It appears that this med stuff is a rocky ride for at least a month or so till my body gets use to it. They say that I may even have to try a couple different kinds till we find the one that works best for me. Did you know no two angels are alike? Gee...I thought an angel was an angel but apparently we are all "unique" and special in our own way. And we all react differently to seizure meds and can have lots of bumpy days till we get the dosage just right. Its kinda like the three bears and the bowls of porridge. Not too hot, not too cold, but we want it just right. (Hee-hee)

I have to tell you, my Daddy has been calm and collected through all the changes I have had recently. And boy is he good about my getting my medication on time.... every time and keeping me on a schedule. The doctors said that is VERY important with my seizure medication. I guess you could say I am just a routine kinda gal..... But then most angels are from what we are told by all my angel friends parents.

Oh yeah, I have to share this with you. My big sister Tori finally mastered tying her shoes. We are all so proud of her. She even earns an allowance now for making her bed and keeping her room picked up! How cool is that? Me, I am not into shopping for my little pony's so daddy still makes my bed and picks up after my me. And you know what? I like it that way....lol.

Tori is also reading books now! And to think she is only in kindergarten. Grandma got her this Dick and Jane book and she reads to all of us. Isn't that something? I told you my big sister was smart. Today I found out that Dick and Jane have a dog name Spot and a friend named Sally. And they all like to look-look and run-run a lot.

Well gotta go for now. Wishing all my friends and family good health and lots of angel hugs tonight. xoxoxo