Miss Emma Our Angel: 3/9/08

Tuesday, March 11, 2008

Congratulations Miss Jordie and family. :-)

Congrats to my classmate Jordie. She has finally been given a diagnosis and she is more rare than we angels. She has CFD (Cerebral folate deficiency) which is an extremely rare disorder and her parents are celebrating finally having a name to her syndrome. Strange as it may sound to some we know what it was like not knowing for 4 years precisely what my diagnosis was and how thrilled my family was to finally know. And then to find out that I was an angel was just too cool as it led us to the Angelman Forum.

So please, all my angel friends and family celebrate with Halle, Bill and Jordie's family as we do tonight. :-) And please take a look at just how beautiful my classmate Jordie is..her mommy let me share her picture with all of you. Take a look to the right column of my blog page and meet Miss Jordyn. :-)

Tori is my big sister. She is 6 years old and VERY smart. She and I talk all the time. She knows what I want and what I need, just ask her. She tells daddy when I am thirsty and when I want a cookie. I think she tells daddy when she wants snacks too. We sisters have to stick together now, don't we? Hee-hee.

Tori loves me so much that she helps daddy look out for me and keep me safe. She shows me how to hold my sippy cups and how to use my fork and spoon to eat just like Grandma does. These are things only a big sister can do. In the evening she lets me play in her room while daddy cooks supper and does the dinner dishes. I even get to play with her little pony's! Isn't she great?